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Minister Napolean opens school for muscular dystrophy kids, father in him says, I know the pain

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  • As the junior minister for social justice in the UPA Government, actor-politician Napol-eon is learning the ropes of administering welfare to the physically challenged; for the father in him, the subject is close to his heart—only two months ago, he bought a wheelchair for his son.

    The minister’s elder son Dhanoosh, an 11-year-old Class VI student in a Chennai school, suffers from muscular dystrophy, a genetic disease that leads to progressive weakness and degeneration of muscles, restricting the patient’s movement.

    After his son was diagnosed with the disease in 2005, Napoleon initiated a series of efforts, including setting up India’s first school for students affected by muscular dystrophy that was opened in Chennai on Thursday.

    At the inauguration, the minister broke down on stage while speaking about his experience as the father of a muscular dystrophy patient. “I know the pain...It is my responsibility as a minister and as a father to ensure their welfare,” he told the gathering.

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    “Dhanoosh is a good student and is extremely efficient. But his muscles are not strong enough for physical work. I used to carry him to the car and from the car to his classroom or home. But as he grew up, it became difficult for me to carry him,” said the minister from his office in Chennai.

    About two months ago, he bought his son a wheelchair. “But he didn’t want to use it. He said he will be fine soon and won’t require it,” said Napolean. That was a difficult moment for the family. But as they got to know of the disease, they found out that there were several such cases in the city. The family became members of the Muscular Dystrophy Association India (MDAI) and Napolean’s wife Jayasudha was elected as its general secretary.

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    happyBy: s.venkateshwaran | 14-Sep-2009 Reply | Forward I am a 9 year old boy affected by this disease. I am very glad to hear that the coorporation has opened a school for us. Though my schoolmates and teachers take care with love and affection, I have to suffer a lot physically. I thank the government for doing this to us.
    muscular dystrophyBy: krithika s iyer | 13-Sep-2009 Reply | Forward it is a great job done by Mr neapolean and chennai corporation. As the severeness of this diseases is increasing at an alarming rate, it is the duty of the government to provide a better quality of life for the injured ones.Most of them to be affected are small kids. Therefore providing not only knowledge but also proper medicene and creating awareness among people is inportant.It would be well and good if the medicenes are brought to our country as soon as possible.
    i am alsoBy: ganesh | 10-Sep-2009 Reply | Forward the goverment must concentrate to unable person also like me.
    i am alsoBy: ganesh | 10-Sep-2009 Reply | Forward the goverment must concentrate to unable person alos like me.
    Instead of starting of schools Consentrate to get the medicine for MDABy: Prabhakar | 24-Aug-2009 Reply | Forward So many children's are there in India, who are effected by MDA. To start the special schools it's good. But if the govt. concentrate to speed up for research on medicine for MDA it is very better. And all the child's are join in regular schools. I think instead of funding for special schools the funds use for research of getting the medicine.
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